Portsmouth Autism Support Network
Find out more about support available in the Portsmouth area

About us

AWARDS FOR ALL
We have been very fortunate to recieve a generous grant from Awards For All for the forthcoming year beginning March 2007. This grant is for the expansion of Portsmouth Autism Support Network. Part of the this exciting expansion is to begin the project for an internet cafe for teenagers amonst other projects.

Aim of Portsmouth Autism Support Network

Portsmouth Autism Support Network was started with the aim of helping and supporting all families and children affected by Autism/ Aspergers at all stages and in any way possible. It is not essential to have a diagnosis to come along to these groups, in many cases the waiting time to receive a diagnosis can take over two years and during that time people often require a great deal of help, advice and support from other parents and that is what we try to offer everyone.

We hold various activities and events, designed to meet the needs of parents, children and the whole family. There is a number people can contact us on if they have a specific query and we produce a newsletter which can also be downloads from this site.

In this first secion on the website we have also illustrated some of the events that we do hold, so you can see some of the events that ahve taken place with great success and much enjoyment from the families.

Living with ASD can be exhausting and at times feel like you are living in a "minefield" as you wait for the next "melt down" to happen. Are aim is to be there to offer words of encouragment, join with you in laughter at some of the situations that do occur and above all help you realise you are not alone. Unfortunatly many people can feel isolated due to living with someone with this condition, through the network numerous families have been able to realise they are not alone, and they can relax knowing that whatever their child/ children does will not cause a reaction from anyone within the group. We are all here to help, support and encourage one another.

Raffles 4 U

 

Raffles 4 U is a company that run a fun lottery site. Anyone can buy a ticket for £2.00 and be entered into one of their 24/7 prize draw's with a chance of winning an instant £1,000 cash! Even more exciting is the fact that Raffles 4 U are also donating £75,000 to PASN as the sales of the tickets proceed. So why not buy a ticket and enter yourself in with a chance of winning some money and at the same time help PASN raise essential additional funds.
 
To visit their website go to http://www.raffles4u.org.uk for the chance to enter a draw.
 

Who are we?

 

 

We are a group of parents of children with an autistic spectrum disorder, and professionals working in the field. We are aiming to provide a support network for parents to enable them to access information about what support is available to them in the Portsmouth area.
This website is part of the first phase of a three phase project to establish a support network open to all parents (and other relatives and carers) of a child within the autistic spectrum.                                       
The factual information contained in this website is taken from reliable sources, such as the National Autistic Society, Tony Attwood and Lorna Wing. However, when opinions and perspectives are mentioned, these do not necessarily represent the views of the group.

Since forming Portsmouth Autism Support Network we have grown and expanded in many ways and are still looking for new ways to further expand and help more fmilies affected by ASD. We now produce a monthly newsletter which is published and printed by "Standard Life", we have autism/Asperger Alert cards, we hold monthly coffee mornings, evening parent support meetings, Picninc in the Parks, and activities for the children at Krazy Kaves and Pitt Street Gym. We hold annual events for all the families to attend and we always try and hold a coach trip once a year which families can access. We also have a library packed with resource books, media and computer data. The library is open to everyone and is available at all the evening meetings and coffee mornings. Shortly the library catalogue will be available on this website so people can then phone the library number and ask for books to be reserved for them.

We also have an education co-ordinator who is employed by the network and this person will be going into schools and promoting the network within the school environment.

The telephone number for the network is available between the hours of 9.00-7.00pm. This is manned by parents within the network and so on times they may not be able to reach the phone due to situations in their own house but you can always leave a message and someone will get back to you as soon as possible.

Numbers important for the network are listed below:-

Mobile network number for enquiries:- 07914331876

Education co-ordinator:-  07914331876.

Library Information:- 07914 254452 

  

Great South Run....Sponsor Kevin and Raise Funds For PASN.

 

For two years running Kevin Bradshaw kindly took part in the Great South Run to raise money for PASN. His efforts, hard work and constant training raised essential funds for the group and we are indebted to the amount of time and energy he put into raising funds for the whole group.

Unfortuntaly Kevin will not be taking part in the run this year so if there is anyone who would be willing to take his place and help to raise funds we would love to hear from you!!

Thanks again Kevin for all you did to help so many families within PASN

Telephone Interview with Raun Kaufman regarding Free Autism Event
Telephone Interview with Raun Kaufman in Relation to the SonRise program and his views on Portsmouth!!
This interview was taken by Laura Hine
General:
What does the Sonrise Program offer/ do?
The program is a departure from traditional methods of autism treatment. The children show us the way in and we show them the way out. Rather than making kids conform to a world they don ' t understand we go into their world and do things that are important to them. We focus the program on them. We try to create a relationship. It 's about creating a relationship rather and a behaviour change. Children with autism have difficulties in forming a relationship and interacting, it ' s not about a behaviour problem. So we focus on creating a relationships then being able to work on other issues.  Everything in the program is about building a relationship with the children and engaging them.
When someone is working with a child in the way the program does, that person is, in essence a sales person to that child, selling out world. Every single thing that they do has to be seen as selling our world and tempting them to be a part of it.
We only want to do things to sell our world so that children are really motivated to do the heavy lifting that it takes for them to cross the bridge over to our world.
 
Why do you think the Sonrise program is so successful?
I 'm certainly a very biased person, as this program is what has made my entire life possible. What makes it helpful or useful is that it was designed by parents to help an actual child with autism and was totally successful.
It wasn ' t designed in a lab, or based on a study of kids who people saw for a week. It was designed in the real world, in a real situation.
It 's the only program that is parent directed. We believe that there is no better, more powerful resource in the whole world to effect change in a child, than their own parents. ' You are the parents; you are more emotionally involved, so you have the love and commitment for your children that professionals wont have '.
When the parent changes, the child changes.
The program encourages the parent to really connect with their child in their world in a way that they can understand. It focuses on what ' s motivating to the child, rather than to the adult.
 
Three key points:
1: It focuses on creating a specialised learning environment that isn ' t over stimulating (this is often overlooked in other places where environments can over stimulate the child).
2: There ' s an area we focus on which is normally overlooked. We focus on the attitude of the parent or facilitator. We spend a lot of time giving attitudinal training or assistance to parents who are struggling. These kids can ' t communicate in other ways so they are highly responsive to attitude, and move away from discomfort and towards joy and optimism. We don 't teach people how to act joyful, and optimistic, we teach them how to really feel joyful and optimistic and to make that real.
These kids have problems as they are in a world that constantly wants them to change and tells them that they are doing wrong, where people feel sorry for them etc. Imagine what it would be like to then be greeted by someone who sees them as nothing but a gift and is exited even for them to be exactly the way they are. Suddenly they can be in an environment where they are accepted and they then become open to change.
 
What do you hope to achieve by coming to England and giving your talks throughout the country?
The talks are free and the lecture is called ' Recovery is an option' . We are not saying that there is a pill to cure people. But in the UK people are just simply not given the options that are available. They may thing there is only one option maybe, but are not expose to things that are really cutting edge and may help.
The talks give people a new set of options to help their children, and parents do not want to pass up on help for their children.
The talks enable any parent to go and get specific options and strategies that they can use immediately and can take home that day and start to use.
Also to make people aware of the Cauldwell Charity- UK charity. I want to make parents aware that there is a big amount of funding available to help people do the program ongoing if they want.
Most parents do not know what is available.
 
Do you think the Sonrise program can be used with all children with autism, or does it depend on the individual?
From close personal experience, we have worked with kids and families at the treatment centre ranging from kids who are 3 years old and non verbal and completely disconnected, to 15 year olds who are highly verbal, with Aspergers syndrome and have difficulty in connecting.
The program starts where the child is in their world, then focuses on the social interaction part. Therefore it applies and can benefit all children throughout the spectrum. The program is currently being used by a wide range of people from those who are verbal to those who are completely non verbal.
 
Having been through the program yourself, what are your thoughts on it, and how do you feel about the way it helped you?
I am so grateful. I really know that if my parents had handled the situation differently to how they had handled it then I would be in some room in an institution now. A lot of people at that time were told that their kids should be institutionalised and that happened, and a lot of people did that. I am incredibly grateful that my parents did not do that, and believed in my when no-one else on earth did. It is really quite amazing.
Growing up, once I had recovered, I had no remnants of autism or troubles. Everything was really easy for me and I attribute that to my parents focussing on helping me to connect.
I was diagnosed at 18 months- 2 years old. My parents then ran the program with for 3 years until I was 5 and had recovered. .
Some people say that it is an extreme method- I say that it' s an extreme temporary environment designed to get extreme more permanent results.
My parents worked their tails off for 3 years, but then at the end they didn ' t have a child with autism or who had any challenges.
The program length varies depending on the child, as every child is different.
The program enabled my recovery and I have had a great life.
It provided me this way of helping other families and seeing their children. I now have 3 generations of experience of it. I had autism, then my sister ' s daughter Jade did. I was then a volunteer for a family.
Now my current girlfriend has a 5 year old boy and we are running the program with him. He has so much personality and is still in the middle of the program.  
 
Portsmouth :
What did you think about the Portsmouth talk last year and its success?
It was really amazing to me. I had been doing interviews for the press for TV, newspapers etc for months for all the different UK areas and built up enough people for all the talks. We did no press for Portsmouth. It was completely circulated by word of mouth, people telling others, and by Jenn. It wouldn 't have happened at all without her. She single handedly told the entire city about it.  
I did 10 UK lectures and Portsmouth was as a favour to Jenn. It was the biggest lecture of the whole tour and the only one that had no press coverage.
We had hundreds and hundreds of people and the reception was amazing. The people were like sponges and wanted to suck up all the information. I was bowled over by the whole experience. It really swept me off my feet and I was amazed how active the parents were. It was incredible.
 
Why do you want to return to Portsmouth this year?
I have a very special place in my heart for Portsmouth because of the way people there want to help their children. I see it as a hot bed for endeavouring to help children with autism.
I feel grateful for how I was received.

Adults with ASD

Welcome to all adults who have ASD. For the past year I have been trying to be able to offer a group or opportunity for adults with autism, but due to funding issues and lack of volunteers I have had no success. I find this very frustrating, because a support group should be there to offer help and support to EVERYONE affected by autism.

Recently I have had an offer by an individual with autism to look at the possibility of forming a forum for adults with ASD. Would you be interested in being part of this new venture? Perhaps as time goes by it would mean a group would naturally form and people would be comfortable meeting one another within a social environment?

If this would be of interest to yourself , or you know someone who would like to participate we would very much like to hear from you. Please send all enquiries to enquiries@portsmouth-autism-support.co.uk .

Summer picninc sunday August 19th
PASN SUMMER PICNIC
This took place on Sunday August 19th.
We all had such a great day, fun was had by everyone with record attendence, plus the excitment of the New Sibs group was launched. The whole day was so much fun. We had the local fire service there, Pamper people, Honey Pot Bus, buncy castles......above all everywhere you looked people were smiling and relaxed. Children were free to be themselves and the SIBS took place in a seperate gym, admist the sounds of fantastic Music provided free of charge by Martin Hodgkinson and his band, Hardly Heroes and other fantastic musicians.
Every year I look forward to this event and as always it was great to meet so many families, new and old and have the chance to met up with loads of people in a relaxed and fun environment. Courtesy of ITV Meridian we have a short clip of the day and some of the fun that was happening. http://www.itvlocal.com/meridian/news/?&void=97608

Wendy Lawson Wednesday April 18th 7.00-9.00pm
Wendy Lawson
Once again Wendy came to talk to us all, and yet again she enthralled and gave all of us so much hope, inspiration and insight into the world of autism. There were times when the room was filled with laughter and then the mood was changed as we reflected on the wisdom in her words, all of us being able to relate directly to situations she described.
It was marvelous to see so many people coming to listen to her, all joining together in a search for a fuller and deeper understanding of autism, and how to relate to are children and young adults. I found it particularily exciting to see so many adults with ASD at this event. All of them commentated on how helpful they found the talk and I am so pleased that Wendy was able to come and talk to so many people,

Reflection on the Christmas Party 2006

I find all the activities and different speakers within the network very helpful and inspiring, I enjoy the trips we have held and the evening meetings we hold each month….but despite everything the Christmas party always holds a very special place in my heart. I think it is because the first thing I really did when I become properly involved with the network was to help run the Christmas party, the first year PASN was formed. I look back on that event and where it was held, which was at the Hilsea Club and we still had room to spare!! Now I look at the fact that we booked Admiral Lord Nelson School and extra rooms as we wanted to ensure we had enough space for everyone not to feel cramped, room for the children to run and play, and an area for people to get refreshments and have a chance to sit and talk. Wow, what a difference!! This difference has come around because of all of you as families.

All of us are united by a common bond, we attend these events and although we may not know others by name we can guarantee that we all have one thing in common….in some way we know a child or family member with autism/Aspergers. We have been blessed by having a child with unique and special challenges. I just wanted to extend a personal thanks to everyone because when I look up and see the children and their parents I am filled with such hope. I feel comforted by the knowledge that PASN is available to everyone, that it is a place where we can find help, support, friendship and laughter. Somewhere we and most importantly are children can be accepted for the amazing children they are and not be judged in a negative fashion, but praised and respected for their own unique and terrific individuality.

I know I was extremely jetlagged at this years party but there is one family in particular that I always watch out for. They attend nearly every function and event we hold but due to their childs sensory difficulties can often only attend for a short period of time. Always the parents are smiling and the way they look at both their children always inspires me. I noticed them arrive and was so thrilled that they had managed to attend but I have yet to find out if this year he managed to get to see Santa. I watched as another young adult with autism joined us for the first time and as he sat playing with his cards and smiling I was so glad that slowly we are beginning to reach out to everyone who is affected by autism all across the spectrum. It is hard running events like these as although we try are hardest to cater for everyone’s needs, it is difficult, but I wanted to thank all of you for your kind words, encouragement and support and I hope that you found it as enjoyable as many others did. I want to take this chance to wish everyone all the best for 2007. I am sure it will bring along fresh, new and exciting challenges and hopefully as a group we can all continue to move forward, supporting, caring and being able to laugh at those special unique moments that are children have the ability to create!!  

Trip to the Watercress Line...Sunday October 29th

 

 

 

On Sunday October 29th just under 100 of us from the network went on the Watercress line and took part in their wizard week. All of us met at Alresford train station shortly after 10.30am and we were allowed early entry  onto the train so we could choose are seats in the carriages they had set aside for the group.

 

It was fun watching the faces of the children (and the Adults) as the train pulled away and the smoke billowed into the air. All of us  were handed wizard "goody bags" which had a selection of items in there for the childrens entertainment and enjoyment.

 

It was a fun day out and the children who came along had a wonderfull time. The memory which will remain with so many of us was the united scream/ shout of glee from the children as we pulled into Ropley station and they spotted Thomas.....all you could hear echoing down and through the carriages was "THOMAS" by all the children!!

 

A very enjoyable day and certainly one that we can look back on and enjoy.

Circus Skills Event

file:// november newsletter 2 

 CIRCUS SKILLS

 

What brilliant fun!!! Those of you that were able to attend the circus day on Saturday 9th September, will know exactly what I mean! I am not quite sure who had the most fun, although my bets are on the adults! I’m still peeved that I only managed to get my plate to spin once, and was totally unable to do it again! It was great to see so many laughing faces, and no pressure for those that needed to sit out and watch for a while before having the confidence to give it a go.

Scarf juggling! What a brilliant introduction for kids – ASD or otherwise – to give them a little more processing time to help their co-ordination – must admit I found it helpful too! Then moving on to huge peacock feathers, bean bags, and balls. Lots of children seemed to find the diabolos fascinating too, and with Peter giving lots of tips on how to get started, it made it less daunting giving most of us a good deal of success – great for the old self-esteem! I also heard tales of great feats of problem solving being achieved – one young man was so determined to succeed at the “pedals” that he worked out that by using a pair of stilts as crutches, he was able to keep his balance on the pedals!!! How clever is that?! All in all, I think the day was brilliant, and I would also like to thank Riverside School for holding the day, and FLASH for organising it with us and for the very welcome refreshments. 

 

I am sure you have noticed the order form on the back of the certificates that were given out on the day, and I know that several comments were made about ordering some of the goods available.

Peter, who took the session and taught us all our fantastic new skills, informed me that the company prefer not to take individual orders, so I am more than happy to gather orders from any parents and make a one-off order to the company on behalf of the network.

If you would like to make a purchase of any equipment advertised on the back of the certificate, please forward the following to me:

  • The tear off slip from the bottom of the certificate, with your order clearly marked on it,
  • A cheque for the correct amount made payable to P.A.S.N. (please do not include payment for any other events with this cheque – thanks)
  • Your name and a contact telephone number – either write this on the tear off slip with your order, or include it on a separate piece of paper.

Then, send it to:           Sally Purser

                                       65, Lonsdale Avenue

                                       Cosham

                                       Portsmouth

                                       PO6 2PU   

OR Bring it all in an envelope to me (Sally) at Krazy Kaves, The coffee morning, or Pitt St.

 

As I believe Santa may need to know about some of these orders would you please make sure I receive your orders no later than 14th October to allow for reindeer post, which I’m told can be fairly slow at this time of year!

                      

Many thanks

 

Befriending Scheme
Volunteer waiting to help a family in Portsmouth

The NAS run befriending schemes across the UK, offering the opportunity for a one to one relationship between someone affected by an ASD (can be of any age & includes other family members) and a volunteer befriender, the schemes support hundreds of families and individuals, in their homes and local community.

Befriending is about building a relationship, sharing time, hobbies and interests.  Support and friendship from a befriender for just a couple of hours a week can make a huge difference to the whole family; it is very much a two way opportunity that is enjoyable and rewarding for all involved.

 Our Bristol scheme has been fortunate enough to be able to match volunteer befrienders with a befriendee in their local area.  In this way we have been able to support families outside of Bristol as far away as Portsmouth.  Kate, our Portsmouth volunteer has been a tremendous benefit to her befriendee and to the family for the past 2 years.  Although their befriending relationship has come to an end, Kate would like to continue befriending.  As we don't actually have a scheme in Portsmouth, at this stage we can only offer support from Kate.  She is an experienced befriender who has been fully vetted (trained, CRB checked, with 2 excellent references).
 
We would like to find the best match possible as this would ensure a lasting and fulfilling relationship.  If you feel you could benefit from the support Kate is able to provide, please get in touch, if you are not successful at this stage, we would with your permission, keep your details on file in case we are able to provide more support in the future.



Please contact Emma or Debbie on 0117 974 8409; volunteering.southwest@nas.org.uk  to find out more.

Legoland Trip Sunday October 8th

On Sunday October 8th we all had the most wonderful day out at Legoland. 17 families took part in this organised trip which was made possible due to fundraising and the generoisty of various organisations.

The gratitude of the families goes to Revelations Church

                                                       Land Registry

                                                       Zurich Insurance Company

                                                       Everyone who took part in the Sponsored

                                                       Walk earlier in the year.

Due to the kindness of the above mentioned  it meant that families could go to Legoland at the heavily subsidised price of £25.00 per family and the smiles on everyones faces really was the picture of the day. The whole day was thoroughly enjoyable, people got soaked on the water rides, braved the "jungle coaster", enjoyed the lego displays, and spun to their hearts conten on the "Spinning Spiders".

On the coach everyone collapsed, tired but content and many a father was heard snoring on the return journey home!!

August 13th '06 Summer picnic
   Annual Summer Picninc

                    Sunday August 13th    - Admiral Lord Nelson School

I am writing this after the picnic because I just knew how much I would want to share my thoughts and experiences on the day itself! Firstly I would like to share some of the children's comments form the day itself, and this is a mixture of ASD children's remarks, and siblings:

"Wicked, when's the next one?"

"" I shall be here at 8.00 tomorrow morning to start again"

" I am not leaving"

"Have you been on that big purple thing? It's very Springy!"

"I am all painted and someone with a different accent has made me an amazing balloon!"

"I met some new friends here today, and ASD is cool"

"I want to stay on the (honeypot) bus all day and can it visit my house?"!

The parents also have some very touching comments and with over 150 people joining us throughout the day I can honestly say it was a very fun and rewarding experience on so many levels.  

There was so much to keep everyone entertained, the honeypot bus with all it's activities, from colouring, facepainting and dressing up to sitting and watching a film- Robbie, who painted fantastic tattoos and face designs for so many of the children,- David and Sarah, who made the most incredible display of balloon sculptures for the children, yet another 2 fantastic bouncy castles from Mr Bouncy, not to mention all the space and freedom, both indoors and out, where the children were able to explore all the various toys and puzzles, - Plus a fantastic raffle with so many generous prizes donated by many local companies - and of course the tuck shop and refreshments. 

 Look in to this site again soon for the photos of the day!

Library Launch Saturday April 29th - Guest Speaker Wendy Lawson

On Saturday April 29th we held the Library Launch for Portsmouth Autism Support Network. This was a very exciting day and we were delighted and overwhelmed by the enormous support of so many people who attended this sepcial day.

The day began by Wendy Lawson from Australia speaking to over 100 people. Wendy is an adult with autism and she presented the most incredible insight into the minds of autistic people. Her positive, caring,and genuine approach was marvellous to watch. Her explanations of how confusing the world is to autistic people, the way she explained speech patterns and thought process, not to mention her keen sense of humor, left everybody spellbound and captivated by all she had to share with so many people.

After the talk people were invited to a buffet style lunch and the afternoon was taken up with the official opening of the library and 12 other stands within the child development centre were available for people to gather information, help, advice and support.

In addition the children had access to play facilities so they could also enjoy the afternnon. A bouncy castle was provided, courtesy of "Mr Bouncy" who always kindly assists the network, the "Honey Pot Bus" was there for the course of the day for siblings and carers and during Wendys talk "Caring For You" and staff from the "Willows" provided creche facilities for the children so that parents could listen to Wendy comfortable in the knolwledge that their children were being entertained and looked after by staff sensitive to ther needs.

The whole day was an enormous success, the general atmosphere of the day was filled with laughter, support, caring and understanding. It was terrific to watch so many people, all united by autism, relaxing, enjoying and learning from the day. The children left smiling,content and happy. Watching autistic childen and their siblings playing, and enjoying themsleves in ways appropriate for themselves made the day so unique and special.

The day was made successful due to so many organisations offerring their help and support. In particular Connors Toy Library, Honey Pot Bus, and Mr Bouncy (Mr. Jones). Standard Life who produced and donated copies of the library catalogue and who also sponser and publish the monthly newsletter. The Lions who helped with deliveries and collection of items that we were unable to transport.

The library launch and resource library has been made possible due to funding received from Community Chest, The local Network and The Lions. Thank you to them all for allowing this wonderfull day and resouce library to become possible within the Portsmouth Autism Suppot Network. Yor generoisty and kindness will benefit so many families whose lives are affected by ASD.

 

Christmas Party December 11th 5pm-7.30pm

The christmas party was held on December 11th and was an evening where children could enjoy the chance to be themselves within an understanding environment and to meet Father Christmas. The event was extremly well supported with a staggerring 150 people attending. Everyone coped extremly well in a hall that really needed to be three times bigger, yet the children coped fantastically and were all so excited about meeting Father Christmas. A bouncy castle was monitored and refreshments were available throughout the evening, but the main focus was the children, as it it always must be at christmas time. Christmas is so majical for them and seing the excitment in so many faces as Santa arrived was truly something.

The children all had their own personnal ticket and chance to meet Father Christmas, and they after they had met him and received their present, they were all presented with a chrsitmas foil ballon and another party bag. They were also all given the opportunity to have their photo taken with Father christmas!!!It was marvellous watching their faces, and knowing that all the families who attended were able to enjoy a christmas event together as a family. Often due to the nature of ASD it is hard to attend social functions as a family but the purpose of the network is to enable everyone to benefit from all events and activities that are organised.

After the event we received much thanks and gratitude from so many parents, who were overwhelmed by the fun their children had  had throughout the evening and after  the staggerring response to this event we are already looking round for a suitable larger venue for next year!!!

Thank you for all the support of so many companies who made this event possible. Primiarily the Portsmouth Lions who committed so much of their time, energy and who donated financially so generously. Peter Cooper from Volkswagon who helped sponser the event, Wilkinsons who donated vouchers and ELC who kindly donated musical instruments.

 

Annual Fun Day and BBQ

Friday August 12 Network Annual Fun day and BBQ The doors opened at 10.30 am amid much excitement for the annual network fun day and barbeque. In total 95 people were present throughout the day. There were several families for whom this was the first time they have ventured out all summer holidays and they arrived nervously and hesitantly, concerned how people would react and cope with their own children.

What parents found was a day when they could relax and not be concerned about their child’s behaviour. Children were allowed to be themselves. Siblings had a wonderful time in the knowledge that everyone there also had brothers/ sisters who had what is often classified as “unusual behaviour” so there was no need for embarrassment and parents slowly relaxed and began chatting, making new friends and were able to exchange stories and offer support from one another.

The bouncy castles provided by “Mr Bouncy” offered untold fun and enjoyment for all the children. Mr Bouncy had also donated a wonderful game called “Beat the Goalie” which every one of all ages enjoyed.A face painter was available and the children had great fun being designed in their favourite faces and having tattoos. There was a refreshment stand full of homemade cakes and biscuits, outside toys, a resource table and a raffle which was made up of the most fantastic prizes which had been donated by numerous companies supporting and helping the autism network. All the children also received a prize

As everyone within the network is aware autism is very difficult to understand and come to terms with, no two children with autism are the same and their behaviour is often perceived as “naughty” by society. Parents are often belittled and upset by unkind remarks and many families become isolated due to societies inability to accept these children. In parks other children frequently look upon ASD kids as “weirdoes and geeks”. They become easy targets for bullies and are ridiculed by their behaviour. Many parents of ASD children resign themselves to the fact that they can not attend parks or go to “normal” social functions as people are unable to cope with their child’s mannerisms and behaviours. One family who attended the day admitted it was the first time this summer they had all gone out as a family Events like these are so important for everyone, the parents, the siblings and the ASD children.

Thanks to the overwhelming kindness and generosity of so many people this event was a major success on so many levels and perhaps the most important aspect was the comment from one child with autism who summarised the sentiments of so many people when he excitedly announced” This is my best day ever”. Thank you to everyone.

Celebration of Autism in London Sunday September 25
On Sunday September 25th, families gathered to travel together to London to take part in the first ever National Autistic Event in Leiscester Square London.It was a "Celebration of Autism" and it was a terrific event enjoyed by everyone who attended. There were plenty of stalls and activities for the children. Sensory areas, sensory room, jugglers, stilt walkers, a bouncy castle and a stage that was always packed with entertainers and speakers. All the families who attended this day really benefited from the experience and came away with many new resources and the knowledge that we had all spent the day in an environment where everyone understood and respected each other and all are children. Everyone was made to feel important and there was much warmth, laughter and enjoyment throughout the day. Towards the end of the day, when we were travelling hime one of the mothers made a comment that summarised the way the network has helped her and her family, by saying that the network had helped her overcome her nerves and apprehension as she knew her childs behaviour would always be tolerated. She said that for herself the network was like "an extended family". The monthly newsletter and activities that are being held are within the link below . Please right click on link to open the newsletter.

october newsletter (1244kb)

Fundraising Activities Sponsored Walk Sunday May 21st

Thank you to so many of you who sponsored everyone who took part in this fundraising event for he network. People were so generous and kind, and as soon as the final total is accounted for and all the moies collected I shall advertise and inform everyone how much money we made. At present the grand total stands at £250.00 with still some more money being collected and handed in to the participants.

I would like to say an enormous thank you to everyone who took part in this event. The weather was horrific. The wind, rain, hailstones......real British weather and I can honestly say it was a walking nightmare, yet somehow we all strode on and did it for all the other families in the network. Christopher and Martin managed to walk the entire 15 miles and against all the odds even managed to smile and laugh( not while the hailstones were falling I miust admit!!). Alex and Vicky, Anthony and Katy Ann all walked 4 miles and all of them deserve congratulations and compliments for their success and perseverance for battling against the odds.

The adults who walked were myself, Jenny (siblings representative) Sally and Tracey. I think all of us experienced every emotion going throughout this walk but the smile on peoples faces at the end of the day did make it all worth while and now we are hoping to put all the money raised towards a family day trip for some of the families within the network,to go to Legoland Windsor.

Further Fundraising Ideas...Great South Run

 Kev Bradshaw is  a parent of a child with autism.  Their family have all benefited from Portsmouth Autism Support Network. Kevin and Brenda, attend the support meetings, Sophie their daughter attends the siblings group and Liam their son, attends various social activities.  Kevin will be doing the Great South Run on Sunday October 22nd and he is  asking people to sponsor him.  Kevin is donating all the proceeds raised for Portsmouth Autism Support Network to further increase awareness of autism and give the children a chance to take part in future social activities and events. Please support Kevin and all the had work and effort he has put into training for the Great South Run and please show your support by offerring to sponsor him and by so doing helping other families within the network.

 

If you would like to sponsor Kevin to complete the Great South Run sponsor forms will be available at all meetings, events and activities held by the network or if you are unable to attend the meetings but would like to sponsor Kevin in this fundraising event, please feel free to e-mail the autism network on enquiries@portsmouth-autism-support.co.uk  Thank you inadvance for your generosity, help and support.

Website launch and open day

The official launch of this website www.portsmouth-autism-support.co.uk took place on Saturday 28th February 2004. The event was very sucessful, with over 60 people in attendance, a mixture of parents and interested professionals.

The need for a variety of support groups, including one for siblings of children on the autistic spectrum, was identified, and we are pleased that two of these groups have now been set up.

Watch this space for further details!

Christmas Party

In December we held a christmas party for all children and their families. This proved to be a very popular and thoroughly enjoyable evening and it was lovely to see how well it was attended.

The siblings group, which runs fortnightly, helped organise and run this event and it was nice to see so many families all relaxed and enjoying themselves with no fear of repercussions from the antics which can sometimes be displayed by children on the spectrum. Everyone let the children and the evening unfold in the true spirit of chirstmas.

There was a disco, party games, a vasy array of food and of course a much required visit from Father Christmas who safely delivered peresents to all the children. The children were very excited at the arrival of Father Christmas as was to be expected and the look of wonder and joy on all of their faces made the evening a very special occassion to remember.

Some of the people who came said they had been looking forward to is, as it was nice knowing that their children and siblings could all attend somewhere as a family, with no fear of repercussions, knowing that everyone there present understood the difficulties that children on the spectrum can and do encounter.

A thoroughly enjoyable and rewarding evening.

Spring Party

On Tuesday April 5 a Spring Party was held at Binstead Community Centre. It was an open evening for all families and their siblings who have children on the autistic spectrum.

It was a very pleasant informal evening. Children and parents alike thoroughly enjoyed the activities, which involved a small disco, dancing and various games. The children had great fun participating within the games and all children were rewarded by plenty of prizes.

The evening was accompanied by much fun, laughter and general participation by all the children as they relaxed and took part in the games/ activities and this gave parents the chance to relax and meet new friends.

Upon the success of the party we are hoping that this will become a regular "termly" event giving all members of the family the opportunity to participate in a non-judgmental environment . Children will have the opportunity to participate if they desire and parents will have the chance to meet new friends and offer support and encouragment to one another.

 

Autism Awareness Week 2004
It was autism awareness week from 17th to 24th May 2004. This is a national campaign to promote awareness of autistic spectrum disorders, and the focus this year will be on "planning for life".

Autism Awareness Week highlights nationally the needs and concerns of people with autism and Asperger syndrome along with those of their parents, carers and partners. The week is designed to raise the profile of autism and Asperger syndrome; to create greater understanding among the general public and to inform about the services offered by The National Autistic Society. Autism Awareness Week highlights nationally the needs and concerns of people with autism and Asperger syndrome along with those of their parents, carers and partners. The week is designed to raise the profile of autism and Asperger syndrome; to create greater understanding among the general public and to inform about the services offered by The National Autistic Society.

Here are some interesting facts along this year's "planning for life" theme:

Only 4% of adults with an autistic spectrum disorder are living fully independently and 30% semi-independently.

40% of carers were dissatisfied with the support social services had provided.

60% of carers found the process of obtaining support from social servcies difficult, such as social skills training and play and leisure facilities (both of which promote independent living and social inclusion.

A family with a disabled child could be asked for their name, address and date of birth over 30 times by different professionals. Evidence gathered for the Children's National Service Framework shows that on average, a disabled child has 32 assessments before their fifth birthday.

Only 11% of carers had no difficulties accessing the financial support that they should be entitled to.

Over a third (36%) openly admitted that they do not understand the system - 64% who had claimed cited problems with the forms they had to fill in..

An NAS survey found that 21% of children with autism have been excluded from school at some time, the most common reason given being that the school was unable to cope with the child.

72% of schools are dissatisfied with the extent of their teachers' training in autism. In schools identified as having pupils with autistic spectrum disorders, only 22% of teachers had received any autism training, the majority for between one to four hours.

Economic analysis highlighted that, from an annual total cost of £1 billion, only 7% was spent on education. The authors concluded that evidence suggests that even moderate increases in educational provision could potentially result in major savings in later living costs.

The need for specialist education places continues to outstrip provision because of the increase in numbers with a diagnosis of autistic spectrum disorders.

Sources:    The NAS Rights in Reality Statistics
                 Times Educational Supplement Survey (1996): Jones, G. (2002) Educational
                 Provision for Children with Autism and Asperger Syndrome.
                 K. Jarbrink & M Knapp (2001), The Economic Impact of Autism in Britain
                 J. Barnard et al. (2002). Autism in Schools: Crisis or Challenge?



For more information about Autism Awareness Week go to www.nas.org.uk 

Family Barbecue
We had a family barbecue on Thursday 5th August 2004 at Queen Elizabeth Country Park from 11.00 a.m. until 6.00 p.m.

The barbecue was open to all family members and friends of families, and around 60 people turned up.

Everyone enjoyed themselves, and many parents said that it was lovely to be in an atmosphere where the children were not judged for any antics that took place, and were allowed to be themselves. The parents felt they could be stress free from that disaproving look often given by other parents (of non autistic children).

Our next social event will be the Families Christmas Party on Tuesday 14th December 2004, at the Hilsea Club, from 6.00 p.m. until 9.00 p.m. Please contact us through the contacts page for further details.